Introducing the Intellectual and Developmental Disability (IDD) Age-at-Death Data Tracker

Scott Landes, Nader Mehri, and Janet M. Wilmoth

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Age-at-death disparities between adults with and without intellectual and developmental disabilities (IDD) in the U.S. have historically varied by type of IDD. To improve our understanding of this persistent disparity, we constructed a website dedicated to tracking age-at-death trends for adults with intellectual disability, Down syndrome, cerebral palsy, and other rare developmental disabilities, as well as those without IDD. The website, which will be updated annually, currently allows users to compare age-at-death patterns for each IDD group by U.S. state, year, biological sex, and race-ethnicity for 2008-2017. Click here to access the website or via the URL https://asi.syr.edu/idd-age-at-death-data-tracker/

About the Authors
Scott D. Landes (sdlandes@maxwell.syr.edu) is an Associate Professor of Sociology, Faculty Associate of the Aging Studies Institute (ASI), and Faculty Affiliate of the Center for Aging and Policy Studies (CAPS, NIA P30AG066583) and Lerner Center for Public Health Promotion in the Maxwell School at Syracuse University. Nader Mehri (nmehri@maxwell.syr.edu) is a postdoctoral researcher with ASI and CAPS. Janet M. Wilmoth (jwilmoth@maxwell.syr.edu) is Professor and Chair of Sociology, ASI Director, and Faculty Affiliate of CAPS and the Lerner Center.